STRIPES OF SOLIDARITY
Welcome, Home!
At Stripes of Solidarity, we aim to amplify the voices of those affected by rare diseases, transforming personal struggles into powerful advocacy. We are dedicated to fostering a community of support, driving forward policy changes, and ensuring that every patient receives the recognition and care they deserve. Through strategic advocacy, education, and collaboration, we strive to illuminate the path to equitable healthcare and empower individuals to turn their challenges into a force for meaningful change.
Histiocytosis
Dive into the complexities of histiocytic disorders, including Hemophagocytic Lymphohistiocytosis (HLH). Learn about the symptoms, challenges, and the latest advancements in treatments. Whether you’re a patient, caregiver, or healthcare professional, this section provides valuable insights into these rare conditions and how we can better support those affected.
Ehlors Danlos Syndrome
Explore the intricacies of Ehlers-Danlos Syndrome (EDS), a group of connective tissue disorders. Gain insights into the symptoms, diagnostic challenges, and the latest advances in treatment options. This section is designed to support patients, caregivers, and healthcare professionals with essential information on EDS and strategies for improving quality of life for those living with this rare condition.
Behcet’s Disease
Discover the complexities of Behçet’s Disease, a rare inflammatory condition that affects multiple parts of the body. This section offers insights into its symptoms, diagnostic hurdles, and current treatment approaches. Whether you are a patient, caregiver, or healthcare provider, you’ll find valuable information on understanding and managing Behçet’s Disease, along with ways to support those impacted by this challenging condition.
Frequently Asked
Questions
What makes a disease rare?
A disease is defined as rare if it affects fewer than 200,000 Americans, or fewer than 1 in 2,000 people in Europe.
How many rare diseases are there?
There are over 10,000 rare diseases.
How many people are impacted by rare disease?
Over 30 million Americans are impacted, and over 300 million people are affected worldwide.
More information?
Need help finding the answers you seek? Check out more resources!
