TEAM

SOS is a people-powered force of rare resilience, bold imagination, and unapologetic authenticity. Our team is made up of advocates, creatives, survivors, and disruptors from across the rare disease, LGBTQ+, and BIPOC communities. Each member brings lived experience, deep passion, and their own unique brilliance to this collective mission: reimagining what equitable, affirming rare disease spaces look like. Together, we are building belonging—one story, one stripe, one bold move at a time.