Histio Uncovered: Stories Behind the Warriors
Friday, September 12, 2025
12:00 pm – 6:30 pm EST
We celebrate Histiocytosis Awareness Month with a first-of-its-kind, 6-hour “pop-in” virtual event honoring all major histiocytosis subtypes through powerful patient stories and accessible clinical insights. Join patients, caregivers, and expert physicians as we bridge the gap between lived experience and medical understanding. Whether you stay for a single segment or the full event, you’ll leave informed, inspired, and connected.
Rare & Radiant Campaign
June 1 – 30, 2026
Join us in celebrating rare disease voices, resilience, and pride. Each June, this month-long campaign shines a light on the intersection of rare disease and LGBTQIA+ identities through three powerful experiences: a social media takeover challenge, an educational webinar briefing, and a virtual art showcase. Together, they amplify stories, inspire action, and honor the brilliance and diversity within our community.
