Histio Uncovered: Stories Behind the Warriors
September 12, 2025
12:00 pm – 6:30 pm EST | Pop-In Style Webinar
Join us this Histiocytosis Awareness Month for Histio Uncovered: Stories Behind the Warriors, a first-of-its-kind virtual celebration and education event honoring the current six major histiocytosis subtypes. This dynamic, 6-hour “pop-in” style webinar blends powerful patient storytelling with accessible, plain-language clinical education—creating a space where lived experience and medical expertise meet.
Whether you’re a patient, caregiver, physician, researcher, advocate, or simply curious, you’ll leave this event with deeper understanding, stronger connections, and renewed inspiration.
What to Expect
- Six Spotlight Segments – Each featuring a patient or caregiver sharing their journey, paired with a physician or clinical expert explaining the subtype, treatment updates, and care challenges in plain language.
- Flexible “Pop-In” Format – Attend just the segments that interest you, or stay for the entire event. Each segment runs about 1 hour, with scheduled breaks.
- Inclusive & Accessible Conversations – Designed for anyone to follow along—no medical degree required.
- Live Q&A – Get your questions answered directly by patients and experts.
Why Attend?
While histiocytosis is rare, the challenges faced by its community—delayed diagnosis, limited awareness, access barriers—are shared across countless rare diseases. By joining, you will:
- Gain insight into six unique but interconnected diseases: LCH, HLH, ECD, RDD, JXG, and Histiocytic Sarcoma/Malignant Histiocytosis.
- Learn about diagnostic processes, treatment innovations, and care realities that may resonate far beyond histio.
- Support a community that often goes unseen, helping raise awareness and advocacy momentum.
- Celebrate the strength, diversity, and intersectionality of rare disease warriors and their allies.
Don't Miss Out!
This is a celebration of resilience, a platform for education, and an invitation to stand in solidarity with the histio community. Whether you pop in for 30 minutes or spend the day with us, your presence matters.
Mark your calendar: September 12, 2025 | 12:00–6:30 PM EST