What is Intersectional Advocacy?
Intersectional advocacy means recognizing that people affected by rare diseases do not live single-issue lives. Our identities—including race, gender, sexuality, socioeconomic status, and disability—intersect and shape the way we experience health care, access resources, and navigate systems.
For LGBTQIA+ individuals in the rare disease space, those intersections often bring:
- Delayed diagnoses due to stigma or provider bias
- Underrepresentation in clinical trials and research
- Lack of culturally competent care
- Barriers to fertility preservation, gender-affirming care, or insurance coverage
- Isolation within mainstream patient communities that don’t reflect their lived experiences
Intersectional advocacy fights for systems that are inclusive of all identities—not just in theory, but in practice.
Briefings, Webinars, & Reports
Catch up on community-driven conversations that spotlight LGBTQIA+ issues in rare. From policy briefings to personal storytelling panels, these sessions offer essential context, lived experience, and actionable insights.
Build Your Platform
Learn how to use your story to drive change—from launching an advocacy page to starting a support group or campaign.
Get Involved
This hub is more than a library—it’s a launchpad.
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You do not need to identify as LGBTQIA+ to access or uplift this content. Allyship is welcome and necessary. These tools are for everyone who believes rare advocacy should reflect the true diversity of our community—and that no one should be left out of the conversation.